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Heart 1999;81:57-61 ( January )

Outpatient clinics for adults with congenital heart disease: increasing workload and evolving patterns of referral

M A Gatzoulis, S Hechter, S C Siu, G D Webb

Toronto Congenital Cardiac Centre for Adults, The Toronto Hospital, 200 Elizabeth Street, Toronto, Ontario M5G 2C4, Canada

Correspondence to: Dr Webb. email: gwebb{at}torhosp.toronto.on.ca

Accepted for publication 29 July 1998

Objective---To examine the evolving role of specialised outpatient services for adult patients with congenital heart disease.
Design---A retrospective analysis of all patients attending the Toronto Congenital Cardiac Centre for Adults over three corresponding three month periods in 1987, 1992, and 1997.
Setting---A tertiary referral centre.
Main outcome measures---Patient demographics, residence, medical and surgical history, type and source of referral, and investigations performed.
Results---In all, 570 patients were seen at the clinic during these three periods. There was a 44% and a 269% increase in workload between 1987 to 1992 and 1992 to 1997, respectively. There was a steady fall in mean age of patients seen at the clinic with time (38.5, 33.6, and 31.7 years in 1987, 1992, and 1997, respectively, p < 0.001). New referrals from community cardiologists and family physicians increased more in relative terms than did referrals from the Hospital for Sick Children, Toronto (6.7%, 15%, and 37.5%, p = 0.02). There was a steady increase in patients with previous reparative surgery (48.9%, 59.2%, and 69.2%, p < 0.002). The proportion of patients with previous reoperations also increased (2.3%, 10%, and 9.2%, p < 0.01). Echocardiography remained the predominant method of diagnosis. The diagnostic mix did not change with time.
Conclusions---Over the past 10 years there has been a large increase in adults with congenital heart disease requiring and seeking specialised care in a tertiary health centre, with a concomitant evolution of referral patterns. These data may be helpful in planning of similar paediatric and adult cardiac services for this expanding population.

Keywords: congenital heart disease;  ambulatory clinics


© 1999 by Heart



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